Education is absolutely the key to bridge the impasse between both sides. This time it is the patient who is teaching as well. There probably would be some doctors who object to that reality. The tables are turned and it is not comfortable for either side, really. Patient advocacy is essential for achieving the outcome all of us desire.
My way of thinking has been that if no one is willing to take a leap of faith, there will be no one to see this through. Every individual should be allowed to choose for themselves. While being cautious is commendable, bullying and posturing is disingenuous at best. It isn't in the best interest of doctors to make that call for their patients. We have the right to question. Again, patients have traditionally relied on their physicians to do the best thing for the sake of his patient. None of us are naive enough to buy into the doctor knows best theory any longer. I believe that the majority of medical professionals did not begin their careers with the intention of fleecing their patients or lying to them. I do think there are enough of them who have become so desensitized to the human condition that they are not heeding the oath they have all taken, "First, do no harm."
As for repeated procedures, this should not be surprising. The status of this procedure is unsure right now. The testing is somewhat up in the air and variable from doctor to doctor. I deliberately did not take my first chance at bat because I didn't feel comfortable with the experience of the person performing the procedure itself. In a way then, I too waited for better pickings. I compared the price of more conventional treatments with that of CCSVI. In the end, having multiple procedures would still be cheaper with better results overall than continuing the former. It is realistic to assume that one shot won't do it for everyone. Until stents are a regular part of the whole package, it will stay that way. I don't fear the hardware nearly as much as I do the disease modifying medications. Still in all, having options is a good thing.
Mammananny
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