tag:blogger.com,1999:blog-4778975207510847726.post8169693817697731676..comments2023-10-03T10:32:39.701-06:00Comments on CCSVI {M}ammanannys{S}tory: Recognize the changing seasons of my journey through MS and CCSVIAnonymoushttp://www.blogger.com/profile/01495519680045333652noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4778975207510847726.post-71840927567388392412010-07-10T01:29:43.664-06:002010-07-10T01:29:43.664-06:00Being scared is part of the process, we know how m...Being scared is part of the process, we know how much it means. Dr. Zamboni reported 92% with MS had CCSVI. From my researching everywhere, I think that is conservative. Many who have been tested negative have retested positive later. We need better testing for everyone,sooner rather than later.Good luck!<br />LindaAnonymoushttps://www.blogger.com/profile/01495519680045333652noreply@blogger.comtag:blogger.com,1999:blog-4778975207510847726.post-33080323638452590422010-07-09T22:22:26.455-06:002010-07-09T22:22:26.455-06:00I love this! You are right, each person has their...I love this! You are right, each person has their own unique relationship with MS. No matter how much victory we gain, there is one thing for certain, no one know what tomorrow may bring, good or bad. You have given me so much strength. I am going to talk to my doctor about CCSVI. I am scared. Scared that I won't have blocked veins, that can't be fixed, and what I live with is what I live with. You have given me courage. Your experience and that you shared it, IS the reason I am going to talk to my doctor, no turning back. Thank you for sharing your journey.Cindyhttps://www.blogger.com/profile/08663014592508915523noreply@blogger.com